Finally a Blog

Master Brody wore these on Halloween after he took off his Dr. Pete costume.

Too cute. Thanks Sissy!

I'm sure the people at church that told me they were mad at me for not blogging for a few days are not alone. Please forgive me? I guess I needed to precede it with a note that no news is good news. After 8 weeks, more fatigue brings less words and creative thought. I had a great suggestion that if I have no words left after being bombarded with medical info for the last 8 weeks that I should post some pictures for your viewing pleasure. So here on out if you see pics and no words, we are good just fatigued.

Over the last few days Brody's reflux has gotten the best of the little guy. He was moved back to a higher care room (which is fine with us). He started a new drug yesterday. It is a drug on a drug study (he qualified for this study because his reflux is more on the sever side than the mild side). Several of the staff have told me that they have seen babies make an amazing turn around after being on the drug for only the 6 day study time. His bottle feeding went up to 4 in a 24 hour period, then back down to 1 in a 24 hour period, then 2 in a 24 hour period. Now since he is on this drug he is on all bottle feedings starting today (8 in a 24 hour period). Tonight he took 47cc. He did so good. They mixed some rice cereal in it to thicken it to help with the reflux. He had two "spells" while we were there where he desaturated and had bradycardia. That's what we need this new reflux drug to fix. Since being on the "Slope & Swing" (for the reflux) his little legs and feet are swollen form the constant angle. He is also doing really good at keeping his body temperature warm enough. And.........once again he was cuter today.

A baby passed away today in Brody's room. Once again a hard reminder of how fragile life is in the NICU. It made a long day for us as we were out of the NICU and couldn't see Brody so that the family could have some private time. We have not gotten to meet this family but we spent the afternoon in prayer for them and will continue to do so, please join us.

Since being moved to another room we met another couple. Shane & Tabitha. Their baby is 2 weeks old. He was 27 weeks gestational age and weighed 14oz. The umbilical cord was underdeveloped and he wasn't getting enough nutrition. He should have weighed about 2lbs. He is holding his own and his parents ask for prayers. His name is Trevor and he has a long road. They also attend the Church of Christ in their home town.

Waylon had a little set back with a perforation in his bowel. So please pray this heals quickly and he gets back to growing.

Hannah Grace!!! She should get to go home this week. It will be bitter sweet to see her go. I have enjoyed getting to know her mommy, Miranda, soooooooo much. They are such a sweet family. Hannah's prognosis looks good, keep praying that she gains full use of her legs. I can't tell you how pretty she is. She has an angelic round face with big eyes and lots of dark hair. She is beautiful. Maybe Miranda will share pictures with me that one day I can share with you.

Once again just so grateful for our gift from God in Baby Bro. He is so sweet and we know what a blessing it is that he is continuing to heal and grow. It will be an awesome Thanksgiving. PTL